What is the Toolkit ?

  • The Birth Defects and Childhood Disability Toolkit is a set of posters on congenital disorders (birth defects)
  • Summarizes information on common congenital anomalies, developmental disabilities and genetic disorders, including prevalence, clinical consequences, treatment, prevention, recurrence risk and needed public health interventions
  • Intended for medical officers, community health officers, programme managers and policy makers and for public health students and researchers working in the field of congenital disorders and childhood disability

1

Birth Defects and Public Health

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1.1

What are birth defects (congenital disorders)?

1.2

Common congenital disorders can be treated

1.3

Impact of congenital disorders on children, their parents/caregivers

1.4

Global epidemiology of congenital disorders

1.5

Congenital disorders: Epidemiological considerations in India

1.6

Essential public health activities needed to address congenital disorders

1.7

Prevalence and recurrence risk

1.8

Surveillance

2

Common Congenital Anomalies

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2.1

Congenital anomalies (What are they?)

2.2

Congenital heart defects

2.3

Orofacial clefts

2.4

Spina bifida

2.5

Hydrocephalus

2.6

Microcephaly

2.7

Congenital zika syndrome

2.8

Clubfoot

2.9

Developmental dysplasia of the hip

2.10

Congenital limb defects

3

Developmental Disabilities

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3.1

Developmental disabilities: what are they?

3.2

Early intervention for developmental disabilities

3.3

Cerebral palsy

3.4

Down syndrome

3.5

Intellectual disability

3.6

Autism

3.7

Attention Deficit Hyperactivity Disorder (ADHD)

3.8

Congenital hearing impairment

3.9

Blindness and vision impairment

4

Some common genetic disorders

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4.1

Public health issues of genetic disorders in LMICs

4.2

Sickle cell disease

4.3

Beta-thalassemia

4.4

Hemophilia

4.5

Muscular dystrophy

4.6

Achondroplasia (dwarfism)

5

Prevention and Risk Factors

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5.1

Risk factors and prevention of congenital anomalies

5.2

Risk factors for developmental disabilities

5.3

Folic acid for prevention of neural tube defects

5.4

Prenatal genetic screening and diagnostic tests

5.5

Molecular tests

6

Childhood Disability

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6.1

What is disability?

6.2

Childhood disability

6.3

RPwD Act 2016 and CRPD

6.4

Welfare services for Persons with Disability

6.5

Disability registration in India

6.6

Disability etiquette

7

Birth defects services

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7.1

Maternal services for congenital disorders

7.2

Abortion legislation in India

7.3

Child health services for congenital disorders

7.4

The Rashtriya Bal Swasthya Karyakram (RBSK) programme

7.5

District Early Intervention Centre (DEIC)